COMMUNITY CARE FOR PERSONS WITH SCHIZOPHRENIA IN INDONESIA
DOI:
https://doi.org/10.17501/24246735.2023.8101Keywords:
Care, Community, Role, Mental IllnessAbstract
Mental healthcare services for people with mental illness have enhanced healthy family relationships, friendships, and even interaction with colleagues at work for persons receiving the care services. Many factors influence the practice of the mental health profession, including family involvement, social support, and coordinated comprehensive care. This research aimed to explore the role of family and community in the practice of care for people with schizophrenia in Yogyakarta, Indonesia. Methods: This was qualitative research conducted in 2021, with interviews and Focus Group Discussions as data collection methods. The participants included eight family members of individuals with confirmed schizophrenia and members of the local community. The analysis employed an inductive thematic analysis to explore various roles in mental health handling. Results: Kinship patterns, cultural values, and religious practice greatly influence care. Care is generally perceived as an act of assistance to functional limitations. It often becomes an area of negotiation in the family and community, particularly on the issues of finances, roles, and responsibilities, and on how the method of care should be delivered. In some cases, families with their social capital created a care network that enables the community's support system. On the other hand, the community also has a formal and informal social organization to advocate for adequate treatment. Conclusion: Community and family support for persons with schizophrenia is an essential factor for optimal treatment. Nevertheless, there is a need to improve knowledge and awareness of mental health in the community to ensure proper treatment is delivered.
Downloads
References
Barker, P. (2013). Basic Family Therapy. (6th ed.). Wiley.
Bhati, M. T. (2005). The brain, language, and schizophrenia. Current Psychiatry Reports, 7(4), 297–303. https://doi.org/10.1007/s11920-005-0084-6
Creswell, J. W. (2009). Research Design: Qualitative, Quantitative, and Mixed Methods Approaches (3rd edition). SAGE Publications, Inc.
Galderisi, S., Rossi, A., Rocca, P., Bertolino, A., Mucci, A., Bucci, P., Rucci, P., Gibertoni, D., Aguglia, E., Amore, M., Bellomo, A., Biondi, M., Brugnoli, R., Dell’Osso, L., De Ronchi, D., Di Emidio, G., Di Giannantonio, M., Fagiolini, A., Marchesi, C., … Maj, M. (2014). The influence of illness-related variables, personal resources and context-related factors on real-life functioning of people with schizophrenia. World Psychiatry, 13(3), 275–287. https://doi.org/10.1002/wps.20167
GBD 2019 Mental Disorders Collaborators. (2022). Global, regional, and national burden of 12 mental disorders in 204 countries and territories, 1990–2019: a systematic analysis for the Global Burden of Disease Study 2019. The Lancet Psychiatry, 9(2), 137–150. https://doi.org/10.1016/S2215-0366(21)00395-3
Human Rights Watch. (2020). Living in chains : shackling of people with psychosocial disabilities worldwide. Human Rights Watch.
Jessica, L., Fithriyah, I., & Ardani, I. G. A. I. (2021). The Importance of Family Support in Successful Treatment Adherence of Schizophrenic Patient. Jurnal Psikiatri Surabaya, 10(2), 83. https://doi.org/10.20473/jps.v10i2.26453
Lestari, R., Yusuf, A., Hargono, R., & Setyawan, F. E. B. (2020). Review Sistematik: Model Pemulihan Penderita Gangguan Jiwa Berat Berbasis Komunitas. ARTERI : Jurnal Ilmu Kesehatan, 1(2), 123–129. https://doi.org/10.37148/arteri.v1i2.44
Marthoenis, M., Aichberger, M. C., & Schouler-Ocak, M. (2016). Patterns and Determinants of Treatment Seeking among Previously Untreated Psychotic Patients in Aceh Province, Indonesia: A Qualitative Study. Scientifica, 2016, 1–7. https://doi.org/10.1155/2016/9136079
National Institute of Health Research and Development. (2019). The National Basic Health Research 2018.
Ozlu, A., Yildiz, M., & Aker, T. (2015). Burden and burden-related features in caregivers of schizophrenia patients. Dusunen Adam: The Journal of Psychiatry and Neurological Sciences, 147–153. https://doi.org/10.5350/DAJPN2015280207
Sawab, S., Yusuf, A., Fitryasari, R., Pujiastuti, R. R. S. E., & Putra, P. (2023). Family perspectives on severe mental disorders and relapse prevention: a qualitative study. Journal of Public Health in Africa. https://doi.org/10.4081/jphia.2023.2572
Suryani, hidayah, N., & Sutini, T. (2019). Withdrawn: The aspects of recovery from Schizophrenia: From The Indonesian Survivor’s Perspective. International Journal of Africa Nursing Sciences, 100179. https://doi.org/10.1016/j.ijans.2019.100179
Tjandrarini, D. H., Dharmayanti, I., Suparmi, Nainggolan, O., Mubasyiroh, R., Djunaedi, Ariwibowo, B., & Ma’ruf, N. A. (2019). Indeks Pembangunan Kesehatan Masyarakat 2018. In Trihono, A. Suwandono, Atmarita, & D. A. Musadad (Eds.), Indeks Pembangunan Kesehatan Masyarakat 2018 (Vol. 53, Issue 9). Lembaga Penerbit Badan Penelitian dan Pengembangan. https://repository.badankebijakan.kemkes.go.id/id/eprint/3935/1/BUKU_IPKM_2018-SK.pdf
Tristiana, R. D., Triantoro, B., Nihayati, H. E., Yusuf, A., & Abdullah, K. L. (2019). Relationship Between Caregivers’ Burden of Schizophrenia Patient with Their Quality of Life in Indonesia. Journal of Psychosocial Rehabilitation and Mental Health, 6(2), 141–148. https://doi.org/10.1007/s40737-019-00144-w
Twamley, E. W., Jeste, D. V., & Bellack, A. S. (2003). A Review of Cognitive Training in Schizophrenia. Schizophrenia Bulletin, 29(2), 359–382. https://doi.org/10.1093/oxfordjournals.schbul.a007011
Wiener, A., Wessely, S., & Lews, G. (1999). “You don’t give me flowers anymore”: an analysis of gift-giving to medical and psychiatric inpatients. Social Psychiatry Epidemiology, 34, 136–140.
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2023 Aan Kurniawan, Rozana Ika Agustiya, Sri Handayani, Yunita Fitrianti
This work is licensed under a Creative Commons Attribution 4.0 International License.
The Conference Proceedings of International Conference on Public Health is entirely Open Access, which means that all published content is freely available without charge to the user or his/her institution. Users are allowed to read, download, copy, distribute, print, search, or link to the full texts of the articles in this Proceedings journal without asking prior permission from the publisher or the author. This is in accordance with the BOAI definition of open access.
Authors who publish with Conference Proceedings agree to the following terms:
- Authors retain copyright and grant the Proceedings of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to share the work with an acknowledgment of the work's authorship and initial publication in this conference proceedings.
- Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the proceeding's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgment of its initial publication in this conference proceedings.
- Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work.
Licensing
Published articles are licensed under a Creative Commons Attribution 4.0 International License.